|Calling Grammy to tell her about the snow falling at our house|
We had our first of many "clinic" visits today. Each week for the remainder of her treatment will begin on Mondays with a visit similar to the one we experienced today. The pediatric oncology offices are similar to any physician's office, but I'm gathering that there is a more open door policy than most. I guess cancer kind of takes away some of the privacy that one might come to expect in any other setting. The patient and their parents need to see so many different specialists within that one clinic visit, that it's more of an ebb and flow of doctors (we saw three today), nurses (we saw three different nurses today) and social workers. The door to each treatment room always stays open and you can hear parents report on how the week is going, any change of behavior, any cause for concern, any high temperatures noted and discussed. The child's name is written on a yellow sticky note (that gets attached to their treatment room door) along with all the other peds oncology patients that will trickle through the office that day. The little window that holds the handwritten names of our children, these precious, innocent, brave little patients stabs my heart when I see them. These names of children that belong to families that never knew this would be a part of each of their stories. An indelible mark of bravery and struggle that each family must walk through. Such a simple reminder, written on little yellow slips of paper.
She had her blood drawn today, the last time through a vein in her arm. Going forward all blood will be able to be drawn via her port. We had good news today. ANC level is good. Platelet count is good. Other aches and pains are all normal and can be expected with the amount and varied number of medications that she is now taking. Her wound looked good and we have discussed her surgery plan for port placement coming this Friday.
|Snow Day with the boys in her life (Dad, Joseph, Ben)|
We discussed a few options and hope for her to be able to attend some school on some days bearing ANC level, energy level and other risk factors. (with me by her side) She is excited at the possibility and we cautiously hope that might be a reality.....sometimes. We discussed again some of her 10 year old kid concerns and she took the news like a seasoned oncology patient, not one who had just learned of her journey not more than a few days ago. I continued to be amazed by her strength, continued to be bothered by the details and the unknown bumps in the road ahead of us, and continue daily to be humbled by the great love and care each of you, our treasured family and friends are heaping upon us.